The SA Prostate Cancer Clinical Outcomes Collaborative (SA-PCCOC) was established in 1998 under a NHMRC Centres of Clinical Excellence Grant. It is an ongoing collaborative venture of the University of Adelaide, Flinders University of South Australia, The Queen Elizabeth (TQEH), the Royal Adelaide (RAH), and the Repatriation General Hospital (RGH).

SA-PCCOC is a disease-specific registry and longitudinal observational study comprising men diagnosed with pathologically proven prostate cancer (CaP) in South Australia. The database follows men with prostate cancer treated at the three major metropolitan hospitals: the Royal Adelaide Hospital, The Queen Elizabeth Hospital, and Flinders Medical Centre/Repatriation General Hospital and a number of private practices are also included. Patients are followed to death or withdrawal.

Please visit our website which provides more information for:

  • Researchers and healthcare professionals
  • Collaborators
  • Men and their families affected by prostate cancer

 

What we measure
Outomes
Who can apply to use our data
Current projects & collaborations specific to the University of Adelaide
Committees
Presentations & publications

 

What we measure

We collect PSA at diagnosis, diagnostic pathology including Gleason primary and secondary clinical stage, treatment type and attributes and prostate pathology for radical prostatectomy patients. Patients complete an Expanded Prostate Cancer Index Composite questionnaire at baseline, 3, 6, 12 months, 2 and 5 years.

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Outcomes

Outcomes measured include biochemical recurrence, prostate-specific death and death from any cause, pathology, treatment outcomes and complications and patient-reported symptoms.

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Who can apply to use our data

We welcome collaborations with individual clinicians, scientists and organisations with a focus on prostate cancer. All analyses undergo ethical consideration, and an EOI form is available. Results are made available publicly through presentation and publications

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Current projects & collaborations specific to the University of Adelaide 

  • Stromal and cancer cell androgen receptors in prostate cancer. In collaboration with the Molecular Aging Laboratory, The Basil Hetzel Institute.
  • PSA kinetics as a predictive tool in prostate cancer. In collaboration with the Population Research and Outcomes Studies, Faculty of Health Sciences

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Committees

The database is governed by a steering committee and managed by three staff members based at the Repatriation general Hospital.

Membership

Membership to includes one clinician from each major teaching hospital (Royal Adelaide Hospital, Repatriation General Hospital/Flinders Medical Centre, The Queen Elizabeth Hospital), one radiation oncologist, one medical oncologist, one researcher, one consumer representative and ex officio members: Data Manager, Clinical Data Coordinator, Research Committee Chair and Executive Officer:

  • Prof Kim Moretti (Chair)
  • Dr Kym Horsell (Deputy Chair)
  • Dr Martin Borg
  • Tina Kopsaftis
  • Scott Walsh
  • Dr Michael O’Callaghan
  • Dr Ganessan Kichenadasse
  • David Merry
  • Sally Sara
  • Dr Braden Higgs

Role of committee

The steering committee gives strategic direction and provides governance for the database. Day to day decisions are taken by the management committee (comprises database team and researchers). It will decide:

  • Ownership of and access to the data
  • Reporting of the data
  • How to facilitate research
  • Policy on authorship
  • Data collected – ideally consistent with other prostate cancer clinical registries such as those in Victoria and the Accord dataset.

Note: The database custodianship is with RGH as the corporate entity managing the funding. Auditing is done by an external auditor of the RGH trust funds

Management Committee

The management committee comprises the Data Manager, Clinical Data Coordinator, Data Analyst and is responsible for the day-to-day running of the database and quality audits.

  • Tina Kopsaftis
  • Scott Walsh

Research Committee

Membership to include as minimum: one urologist, one radiation oncologist, one medical oncologist, one researcher and ex officio members: Data Manager, Clinical Data Coordinator and Executive Officer:

  • Dr Martin Borg (Chair)
  • Dr Kerri Beckmann (Deputy Chair)
  • Prof Kim Moretti
  • Tina Kopsaftis
  • Dr Ganessan Kichenadasse
  • Dr Andrew Vincent
  • Dr Nick Brook
  • Scott Walsh
  • Dr Michael O’Callaghan

 

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Presentations & publications

See our full list of publications and annual reports.

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