The Australian Corneal Graft Registry operates an Australia-wide register of human corneal transplants. It opened in May 1985 and thus has now been in operation for over 27 years.
The purpose of the Register is to collect information that will inform clinical practice and to identify risk factors for poor patient outcomes. It currently contains records of over 24,000 transplants, some of which have been followed for over 27 years.
All information is de-identified, to maintain confidentiality of the database.
The latest report from the Australian Corneal Graft Registry (ACGR) was released in 2012. The census date for the penetrating grafts analysed in this report was 01/06/2010 and it included data on approximately 20,000 of these type of corneal graft. Data for approximately 3,000 lamellar grafts were also analysed indepth for the first time, aknowledging the important role these grafts have come to play in the continually evolving field of corneal transplantation.
At registration, we seek information on the recipient, the donor, the eye bank practices and the operative procedure. Follow-up then occurs at approximately yearly intervals for an indefinite period, and ceases upon loss of the graft, or the death or loss-to-follow-up of the patient. At each round of follow-up, we request information on the graft and visual outcome, and upon relevant post-operative events and treatments.
The data are entered into an Access database and checked for consistency. Descriptive, univariate and multivariate analyses are subsequently performed using SPPS and Stata software, and the report is eventually collated.